Yesterday Alex Smith, CEO of Harrison’s Fund, came into our London office to tell us about the charity he started to help raise awareness and funds to help find a cure for Duchenne Muscular Dystrophy which his son, Harrison was diagnosed with in January 2011.
He told us about the heart breaking story of how he discovered his son had this devastating disease “the doctors told us to take our son home and enjoy him while we can. Your son is going to die”. He is giving all he can to help raise money to support the promising research to find a cure. He said in 10 years time he doesn’t want his son to turn to him and say ‘could you have done more Dad?”
Duchenne Muscular Dystrophy is a fatal genetic disorder in which the body can’t produce dystrophin, a protein your body needs to build up your muscles. At the moment there is no cure, with most dying in their late teens or early twenties. Alex said “I’m working on borrowed time. I have 9 years left to save my son.”
One in 3,500 boy is born with it, and in the UK 2,500 kids have it at the moment.
The mission of Harrison’s Fund is to "Get as much money as possible into the hands of the world’s best researchers, who are working to find a cure for Duchenne Muscular Dystrophy.” In the first year of the charity they aimed to raise £30,000. Two years in they have broken the £400,000 mark.
Harrison’s Fund is now one of the five core charities on the Duchenne Alliance team, who together have helped the Alliance reach a funding level of $2 million dollars into the research pot."
From now until April 2014 Investigo will be raising money for Harrison’s Fund in order to help develop of cure for Duchenne Muscular Dystrophy.
Investigo has been divided into 10 teams, each with a minimum target of raising £1000 before April 2014 in whichever way they like.
Secret team meetings are now in full swing with no one giving anything away. Ideas so far have ranged from body waxing and fancy dress to space hopper racing and sky diving.
Since we started two weeks ago we have raised over £1000 for the cause by selling pizza, sweets and cake, as well as a raffle, with many more events currently being put in place for the next few months. So keep an eye out for future fund raising events we are holding!
To visit the Harrison’s Fund website click here.